1.11.2015

My Girl





A little about My Girl! If I ever need fashion advice, I ask Hayley. She has natural fashion sense and style. From the time she was a tiny toddler, she was a bundle of energy and would do flips on the couch. She loves Audrey Hepburn and hip hop. What I have been most impressed with is her ability to roll with her health problems. Her chronic disease does not define her.

Back story: In May of 2011, Hayley was diagnosed with idiopathic autoimmune disease. Idiopathic meant that the cause of her random swelling was unknown even after extensive testing at the allergy clinic.

In short Hayley's body would be covered with hot, angry, red hives and different areas of her body and face would swell. For example, her right eye would swell and her left jaw. She looked like a really cute Quasimodo. 

However, that did not stop people--even adults from staring and whispering. It was a very difficult and scary thing she was up against. She had to carry and be read to administer an epi pen if the swelling involved her throat or she became anaphylactic. She was only 11 years old and in 5th grade.

But what is really cool about Hayley is the way she rolls with problems of this nature. She was put on Prednisone for a year and gained 10 pounds which is a lot for a little girl. The medication makes people very irritable, causes moon face, muscle aching, brittle bones, etc. It's a nasty but effective medication.

After she was finished with Prednisone, she did not have any further problems until December 16, 2014 when her autoimmune disease reared its ugly head. The good news is: Hayley has dealt with this chronic health problem with a great deal of positivity and maturity. I have been impressed with her compliance, willingness, and acceptance. That's my girl! 


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